Yesterday, I learned the results of my second time around at genetic counseling. The counselor told me that I have what’s called [redacted], and it pretty much explains 90 percent of the medical problems I have had my entire life. Like, pretty much everything. It’s all been [redacted] the entire time. Basically, in the genetic lottery, I lost, and gotta say y’all, I have been reeling.
Am I going to divulge the name? Nope, not at this time. Maybe later when I’ve wrapped my brain around what it all means, and what I have to do. Right now, I feel pretty fucking angry. This [redacted] is something my mother passed down to me, and it’s something she never knew she had.
This [redacted] is why my mom got sick at the age she did and why she died. It’s why I got breast cancer and thyroid cancer. Everything that has been absolute shit in my life (medically speaking), it’s been this. This anger is boiling in me, and if it doesn’t come out, I’m going to erupt. I can feel it vibrating out of my fingers and it’s escaping through rage with a layer of panic and anxiety.
I have a lot of fuck yous that I need to get out of me. I want to release these fuck yous into the universe, which has given me a great fuck you. Hey, this blog is “get up swinging.” Maybe I need to take some swings.
I want to say fuuuuuuuuuuuck you to this [redacted] for being the source of all my mother’s problems, and being the reason I grew up without my mother. I know metastatic breast cancer killed her, but [redacted] lit the fucking match.
I want to say fuck you to anyone who wants me to see the positive in what’s a very much negative situation. There’s no putting lipstick on this pig. Let me say this very clearly – I’m allowed to feel angry and sad. If my anger and dark mood makes you feel uncomfortable and icky on the inside, those are your feelings to manage. Not mine. I don’t have to put a fake smile on my face to make anyone feel comfortable.
I looked into a crystal ball, y’all, and all I saw were a never-ending parade of doctors visits, MRIs, surgeries, and whatever medical procedure is necessary to keep me upright. Why can’t we let sucky things just suck? It’s okay. I’d be a robot if I could be given this diagnosis, put a smile on my face, and go, “It’s okay, but things happen for a reason?”
I have no desire to be anyone’s inspiration porn, and my anger isn’t an invitation for any pity, as well. I’m not feeling sorry for myself. I am acknowledging my feelings, and right now, those feeling are pretty much anger and despair.
I want to say fuckkkkkkk you to insurance companies and doctors offices who make dealing with illness and issues a full time job. I spent 40 minutes today just to get an appointment for my first doctors appointment since this diagnosis. I need a [redacted] as soon as possible. In fact, I probably should have one 3 years ago.
This medical practice told me twice that they didn’t have an opening for a month. I escalated matters, and probably not in a nice way. I do not give a shit. I need this test done, or maybe this doctor’s office might want to hear my anxiety and worries every day over the phone until they can see me.
Yeah, I have an appointment on Monday. Funny how that works.
I’ve already had cancer twice, and this diagnosis means [redacted] in my future. I’m going to be an advocate for me because nobody else is going to take up that role for me. Not a single person. This is on me, and it’s my life. If you can’t help me, I will find someone else who can. Just get out of my way.
Just before we wrap things up, folks, I have a couple more special fuck yous.
A big fuck you to the politicians out there who think people like me don’t deserve to have access and keep access to quality healthcare. They think it’s for the worthy or those who have money, and at the same time, these politicians don’t give any shits at all about rising medical costs and drug prices. Nah, let’s keep pricing the sickies out and let them die out, amirite or amirite?
It hasn’t been cheap keeping me alive, and that doesn’t look to be changing… ever. I have something I have literally no control over, and any day, the rug can be pulled from me. There’s nothing I can do about it… but hey, if I become too sick to work, I’m just probably a lazy, good-for-nothing expecting sumthin’ for free, huh?
Fuck. You. Especially. To. Paul. Ryan.
This is a “Fuck you, Paul Ryan” household, always.
An enthusiastic fuck you to anyone who would dare tell me I could take some essential oil or ingest CBD oil 24-7, and that will cure all my problems. You come at me with any of that bullshit, I hope you run faster than me, but guess what? My time is improving. Unless I’m in your office and you’re reading my medical chart, I do not give a shit about your opinion or your so-called research. Oh, why didn’t you tell me that you did some google searches and watched something on Netflix, that’s all I needed to hear. Please tell me how I can “beat” [Redacted].
GTFO with your wellness, woo peddling selves. You don’t know anything about [redacted]. Anyone who comes at me with that is going to get a lecture from me about abelism, and how just the fact that you’re healthy, doesn’t mean you know what it’s like to cure all that ails others. I won’t tolerate it… ever. Consider this my one and only warning. If I want your opinion about anything related to my health, I will ask.
Finally, a very special FUCK YOU to [redacted]. You have been the cause of all my major medical problems and I guess will be the source of most of my future ones. FUCK YOU for ramping up my anxiety back to unheard of levels. Personally, I have missed panicking and crying at work. Wait, no I haven’t.
FUCK YOU [redacted] for affirming my decision to never have kids. You know what, in an alternate universe where I haven’t had all these medical issues, I think I would have been a kick ass mom. I know I would have, but I have always known that given all my problems and the fact that my mom had them too, I never wanted to pass this unknown issue to a kid. Well, now I know the name. When I’m on my deathbed, I’m not going to have a single fucking regret that I didn’t have any children.
I’m going to be grateful.
How messed up is that? I’m going to be grateful that there isn’t a child out there with 50 percent of my DNA because I wouldn’t a child to go through what I have. I guess that proves my point that I know I would have been a great mother because that’s a pretty motherly thing to think, huh? I don’t want a child to ever have to suffer.
FUCK YOU [redacted]. I never wanted to be defined by cancer. Joke’s on me. Now I’m defined by [redacted].